

Lance Pelletier
@fighthhtwithme
I’m a Patient, Advocate, and Caregiver of 2 Daughters with Hereditary Hemorrhagic Telangiectasia
🔻🔻🔻
🧬 HHT 🧬
-2nd most common inherited bleeding disorder
-average ~27 years to diagnose
-affects approximately 1/5,000 people
-estimated 90% remain undiagnosed
-autosomal dominant genetic mutation, or spontaneous “de novo”
-affects Blood Vessels & dysregulated Growth Hormone
🔺🔺🔺
“I want to be the worst thing that’s ever happened to HHT - not the other way around.”
#HHTawareness #fightHHTwithMe #morethanjustanosebleed #CureHHT
*See CureHHT.org for Medical & Patient Resources, and more
🔻🔻🔻
🧬 HHT 🧬
-2nd most common inherited bleeding disorder
-average ~27 years to diagnose
-affects approximately 1/5,000 people
-estimated 90% remain undiagnosed
-autosomal dominant genetic mutation, or spontaneous “de novo”
-affects Blood Vessels & dysregulated Growth Hormone
🔺🔺🔺
“I want to be the worst thing that’s ever happened to HHT - not the other way around.”
#HHTawareness #fightHHTwithMe #morethanjustanosebleed #CureHHT
*See CureHHT.org for Medical & Patient Resources, and more
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